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» Products & Services » » Medical Affairs » Medical Affairs Excellence

Rare Disease Medical Affairs Impact Equation: Linking Activities with Strategic Outcomes to Drive Real-World Impact

ID: POP-414


Features:

19 Info Graphics

20 Data Graphics

350+ Metrics

13 Narratives


Pages: 48


Published: 2025


Delivery Format: Shipped


 

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919-403-0251

  • STUDY OVERVIEW
  • BENCHMARK CLASS
  • STUDY SNAPSHOT
  • KEY FINDINGS
  • VIEW TOC AND LIST OF EXHIBITS
In rare disease, every Medical Affairs action counts—and Medical Affairs groups are increasingly seeking to prove their value. This report empowers Medical Affairs leaders with data-driven insights and practical frameworks to connect what they do with the outcomes that matter most.

Through extensive benchmarking and analysis, this research reveals how top-performing organizations are redefining Medical Affairs as a strategic engine of real-world impact. By linking leading indicators—like engagement quality, evidence generation, and MSL insights—with lagging indicators such as treatment uptake, clinical guideline inclusion, and access milestones, these teams are demonstrating measurable influence on patient care and organizational success.

As rare disease portfolios expand, so does the need for clear proof of value. Traditional activity metrics are no longer enough. Medical leaders must now show how their strategies directly drive treatment adoption, shape clinical practice, and accelerate access.

Developed by Best Practices, LLC, this report explores how innovative organizations are advancing measurement maturity through strategic indicator mapping, integration of real-world data, and smarter outcome linkage. Yet it also exposes a critical challenge—the ongoing gap between actions and outcomes. Closing that gap is the next frontier. It’s how Medical Affairs will secure its role as a central driver of evidence-based impact, cross-functional alignment, and sustained organizational value.

Industries Profiled:
Biopharmaceutical; Pharmaceutical; Health Care; Biotech; Clinical Research; Laboratories


Companies Profiled:
Alnylam Pharmaceuticals; Boehringer Ingelheim; Eton Pharmaceuticals; Grifols; Jazz Pharmaceuticals; Otsuka; Sanofi; Syndax Pharmaceuticals; Takeda

Study Snapshot

This research captures insights from 12 Medical Affairs executives across 9 biopharmaceutical organizations specializing in Rare Diseases. In-depth interviews with senior leaders offer nuanced perspectives on how Rare Disease Medical teams link activities with strategic outcomes and organizational priorities.

Key topics covered in this report include:

  • Rare Disease Leading and Lagging Indicators of Medical Impact
  • Frameworks for Strategic Impact Measurement
  • Integration of Real-World Data and Evidence
  • Role of Medical Insights in Launch and Access Success
  • Rare Disease Medical Affairs KPIs and Performance Measurement

Key Findings

Select key insights uncovered from this report are noted below. Detailed findings are available in the full report.

  • Top Measurement Hurdle Hinges on Too Many Market Variables To Clearly Link Action to Outcome: 83% of surveyed Medical organization cite this is a major challenge. Meanwhile, 50% cite limited resources/data as a critical challenge, and 42% indicate “we don’t know what outcomes to measure.”
  • Managing Leading and Lagging Indicators Over Time: Leading indicators are revisited monthly or quarterly by 33% of organizations – more than any other interval surveyed. Lagging indicators are most often assessed on quarterly basis (42% of orgs) or ad-hoc basis as needed (33% of orgs).
Table of Contents

Sr. No.
Topic
Slide No.
I. Executive SummaryPg. 5
II. Leading Indicators Which Demonstrate ValuePg. 15
III. Linking Leading & Lagging IndicatorsPg. 21
IV. Lagging Indicators of Medical ImpactPg. 28
V. Assessing Metrics, Outcomes & Data Sources for High ImpactPg. 39
VI. Respondent DemographicsPg. 46
VII. About Best Practices, LLCPg. 48

    List of Charts & Exhibits

    I. Executive Summary

    • One-page executive summary
    • Benchmarked companies
    • Executive insights and takeaways
    • Rare Disease Medical Impact Cycle: Connecting activities to strategic outcomes
    • Key quantitative highlights
    • Insights vs. impact pathway

    II. Leading Indicators Which Demonstrate Value

    • Top-rated activity metrics across Rare Disease Medical Affairs
    • Case study: Evaluating MSL impact across multiple rare disease workstreams
    • Top field activity metrics
    • Top non-field activity metrics
    • “Cycle of Impact” examples: How Rare Disease awareness and education translate into measurable engagement outcomes

    III. Linking Leading & Lagging Indicators

    • Benchmark linkage rates across Rare Disease teams
    • Most linkable medical activities to strategic outcomes
    • Most linkable field activities to critical external outcomes
    • Cycle of impact: Real-world examples showing the impact of medical insights
    • Most linkable non-field activities to critical external outcomes
    • “Cycle of Impact” examples: Real-world influence of congress presentations and post-congress engagement

    IV. Lagging Indicators of Medical Impact

    • Case study: Using AI to uncover care gaps and optimize Rare Disease MSL deployment
    • Prioritization and linkability of strategic outcomes
    • Gap analysis: Importance vs. measurability of impact metrics
    • Linkability trends across lagging indicators
    • Linking real-world data outcomes to medical activities
    • Connecting provider-level outcomes to tactical medical engagement
    • Measuring Medical’s influence on launch strategy, guidelines, and access
    • Cycle of impact: Real-world examples showing the impact of patient support
    • Cycle of impact: Real-world examples showing the impact of disease awareness and knowledge retention through field and digital engagement
    • Key challenges in linking Rare Disease tactics to strategic outcomes

    V. Assessing Metrics, Outcomes & Data Sources for High Impact

    • Benchmarking activity metrics across new vs. mature rare disease products
    • Tailoring measurement frameworks by product lifecycle stage
    • Evolution of medical KPIs over time
    • Navigating competing strategic objectives across medical levels
    • Critical RWD sources to validate Rare Disease impact
    • Tracking data granularity to strengthen activity-to-outcome linkage

    VI. Respondent Demographics

    • Geographic distribution of benchmark participants